UK Rare Diseases Stakeholder Forum- UKGTN activities

Written by Jacqui Hoyle on 2 June 2014

The UKGTN Director was invited to join this group that will report to the Health Ministers of the four countries on the progress on implementing the UK Strategy for Rare Diseases. The first meeting was held on 11th March 2014. UKGTN was invited to provide a summary of data and information that would be of relevance to the Forum’s work. This was returned and subsequently we have been requested to align the submission against the 51 commitments outlined in the Strategy. A revised paper was endorsed through the UKGTN Rare Disease Service Improvement Working Group and is available to download here